Jul
2

Alarming news for Minorities Representation in Cord Blood!

Since the development of Cord blood banks in 1989, several people have reaped the amazing rewards they have to offer! Many, many lives have been saved and the research completed has been extremely promising. Awareness is  without a doubt the greatest obstacle to the expansion of cord blood banking. However also among these obstacles is that  banks all over the world have an alarmingly low number of cord blood units  available to represent minorities.

Highly underrepresented:

  • Asian
  • African American
  • Hispanic
  • Mixed Ethnicities

Did you know that Caucasians have a 50% better chance at finding a donor through the national marrow program? For others the chance can drop to below 15%!  There are a few major reasons for these staggering statistics.  One of the biggest reasons is that the minorities listed above  have a larger variation of HLA types found in there blood than Caucasians. “What is HLA types?”, you ask? An HLA type is what makes each individuals blood unique. It is the determining factor used when looking for a donor.  So when minorities, especially with a mixed background, are searching for a donor, the odds of finding a match are much higher.

I think it’s safe to say, that this is a major problem!  The solution is simple! We need to raise awareness of cord blood preservation and increase bone marrow registrations. Everyone deserves a fighting chance! There is NO better time than right now! July is Cord Blood Awareness month..together we can spread the word!

 You can help by:  Tweeting on twitter, updating your status on facebook and sharing this valuable news with everyone you know!

Together We CAN Help Save Lives,

Natalie Curry

Jun
3

What would you do if you found out your child was going to die?

Aticle from Womans Day Magazine, 1991

Article from Womans Day Magazine, 1991

Twenty four years ago my parents were faced with a heart wrenching reality. Doctors told them I was going to die.

Doctors told my parents that my ONLY chance for survival was for them to conceive a perfect match sibling.  But not to bother because:

  • The  chances of that happening were virtualy ZERO.
  • Most importantly,  they didn’t have time to conceive a perfect match because I would die before that even happened.
  • There was a 25% chance that any future children would also have Fanconi Anemia and also die!

Have you ever wanted to do something and had everyone telling you don’t do that, even though in your heart you knew it was the right thing to do?  If so, then you can begin to understand how hard it was for my parents to move forward and try and conceive again for only a SMALL chance at saving my life.

Even after making the decision, they were STILL confronted with HARSH criticism and were told that conceiving a child to save another was morally wrong.  My parents decison to have more children saved my life. They had more children, not because they needed them for spare parts, but because they had LOVE.  My mom has always said that if I would have died she wanted to have peace in her heart knowing that she did everything she could to save me.

Too many people place judgment upon parents who have a child to save another. So to those people: Imagine looking into your child’s eyes and knowing there is a chance they may NOT make it to high school? Can you imagine knowing there was a chance they would NOT be able to fall in love. Can you imagine theres a chance they will not grow up and start a family of their own? Can you imagine the feeling of not knowing what day could be there last?

Is there anything you WOULDN’T do?

Together We CAN Help Save Lives,

Natalie Curry

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