Nov
0

Finding YOUR Inspiration

Mosaic Tiles

Mosaic Tiles

“Each person’s  life is like the pattern of a mosaic. Each thing that happened to you is like one tiny stone in the mosaic and each tiny stone fits into the perfected pattern of the mosaic of your life which has been designed by God. I pray that I may trust the designer.”- Hazelden’s Classic

Today at work I had an incredibly stimulating conversation with a co-worker. We talked about the ups and downs of life, living with the fear of the unknown and how everything in life happens for a reason. Sometimes life throws you curve balls and often times when you are least expecting it. In the end we came to the conclusion that life is about taking risks, don’t be afraid to jump right in!  

I found extreme inspiration and comfort today in the most unexpected  of  places. For me life is about taking that inspiration and sharing it with others. When you are having a rough day and you feel like giving up just remember, NOTHING ever stays the same! Inspiration is all around you, if you look you will see it!

Natalie Curry

Sep
4

The Ride to far Away

Justin and I on the Caribbean Cruise

Justin and I on the Caribbean Cruise

I want to share with you a story that will be found in my upcoming book.

“The Ride To Far Away”

The year was 1989 and one family traveled to the distant place of Paris, France. One dad, one mom, one grandma and two sisters embarked upon what would be the trip of a lifetime.  When I was four years old we went to Paris for my cord blood transplant. “Why Paris” you ask? Paris had more experience with transplants of this kind and had much higher success rates. I don’t recall much of my families trip to Paris but there is one event that has never escaped my mind. In the US my mom was always with me, she was at every test, and every doctors visit. Of course I was only an infant and in the US it was very common for parents to be with their children 100% of the time.

I’ll never forget when the day had come for me to receive my radiation. This was the day that would determine weather I would be traveling home in a coffin or in the comfort of my moms arms. The radiation treatment was going to take place in a different hospital across town. Mom had made preparations to go with me to receive my treatment. When the morning arrived for us to leave the doctors informed her she would NOT be going with me,and that it was against there protocol.

With this news mom became very upset.  She knew that this could be the last time she got to give me a hug and a kiss and tell me she loved me. She knew that this could be the last time she ever saw me alive. With this huge reality sinking in the once invincible woman sat down on the edge of my hospital bed and began to cry. Up to this point in my life I had never seen her cry.

Very early in my life, practically as soon as I could talk, my Grandma J taught me how to pray. She would say “lets talk to Jesus.” We’d get down on our knees, fold our hands and close our eyes. We would pray of happy things,  to make every body safe and we would pray for my sisters at home, whom I missed so much.

When mom sat down and began to cry, I didn’t cry and I wasn’t scared. I simply said “Mommy they can keep you from going, but they can never keep Jesus from going and holding my hand.”

Mom didn’t get to go with me that day. And as you already know the radiation was a success. Now I am sitting here today very much enjoying my life! None of this would have been possible without my family and the miracle found inside of Emily’s Cord Blood.

When I was 12 I wrote a poem about this experience.

“The Ride To far Away”

It’s only ten hour away
when the men with the white coats
will come to take me away from my Mommy.
As I watch her cry I try to be a big girl.
I feel sad and I wonder is she trying to tell me goodbye ?
She tells me she can’t go with me
and hold me hand tomorrow when they take me to get that thing
they call radiation.
I listen to her words but all I notice is that sad look on her face.
She tells me they won’t let her go with me
on the ride to far away. She says it will be hard
because the men in the white coats all speak a different way
she says I won’t understand but then I stop her I guess she forgot
“Mommy they can keep you from coming but they can never keep
Jesus from going and holding my hand”
as they rolled me away I felt a big hug
then I heard Mommy say “Jesus take care of my baby”

There is more of this story and many others that can be found in my new upcoming book.

PLEASE let me know what you think!!

You can help raise awareness of cord blood preservation by tweeting on twitter, updating your status on facebook and spreading the word to everyone you know.

Together We CAN Help Save Lives,

Natalie Curry

Sep
0

Meet Chassy……Stem Cell Therapy For Dogs!!!

Meet Chassy from Natalie Curry on Vimeo.

Meet my little baby, Chassy, and learn how stem cell therapy is being used to treat animals!!

Together We CAN Help Save Lives,

Natalie Curry

Aug
1

“Health Insurance should be a RIGHT not a FIGHT”-Senator Kennedy

Senator Kennedy

Senator Kennedy

Sadly our country lost a great man yesterday and the Kennedy family has suffered yet another tragic loss. Senator Kennedy was a good man and a great politician. He stood for so many important things but most importantly he stood for the equality of the American people. He believed that every American was entitled to health insurance. He felt that there should be no discriminating factors that could determine ones right to receiving health insurance.

Anyone who has ever been to a see a doctor or just had simple blood work done knows how tough health insurance companies can be. For me I can especially relate since it has been a constant battle my entire life. When Mom and Dad were making preparations for my cord blood transplant in the late 80’s my insurance claim was denied OVER and OVER again. The insurance companies stated that since “I wasn’t on my death bed”, yet, it wasn’t necessary for me to have a transplant so they kept denying to pay.  Without a transplant I was going to die, it was only a matter of time. My parents refused to take “no” for an answer, so they hired an attorney to fight a legal battle with the insurance company. The insurance company ended up paying for a portion of my transplant. With the help of close family and friends mom and dad got the funding they needed to make my transplant successful.

Unfortunately many people are not as lucky as I was. Many of them die fighting the battle against their insurance companies because they run out of time and succumb to their illness. 

Cord Blood banking is not yet being covered by insurance companies. However the good news is that now some insurance companies are beginning to consider covering cord blood banking. Hopefully in the near future many insurance companies will be able to provide families with assistance in banking their child’s cord blood.

As the late great senator Kennedy said “Insurance should be a
right NOT a Fight!”

You opinions are VERY important to me, please let me know your thoughts.

Together We CAN Help Save Lives,

Natalie Curry

Aug
1

Can you hear me? Cord blood treats hearing loss!

Imagine not knowing the sound of running water!

Imagine not knowing the sound of running water!

 Today when you walk outside you will likely hear the sound of cars or the sound of people passing by or the sound of the door closing behind you. These are all sounds that you hear and don’t even realize it. But sadly for many people if they heard these sounds they wouldn’t recognize them.  To them these sounds are not real.

My entire life I suffered from hearing loss in both of my ears.  I tried for years to wear hearing aids, but  never had much luck with them.  When  they weren’t falling out they were causing a distracting beeping noise that you could hear across the room. School was difficult because I heard about 50% of what teachers said and understood about 20% of that.  Hearing became a struggle in many aspects of my life. By the time I was three years old I learned how to read peoples lips.  This is a skill that I relied heavily on for the majority of my life.

I had surgery on my right ear when I was 10 years old in hopes of improving my hearing. Sadly the surgery was unsuccessful and the recovery was anything but smooth. Imgaine having a tooth ache and an ear infection that won’t go away and that it is what it felt like.  I was extremely disappointed but did not given up hope that someday something would work.

In 2004 when I was 19 years old, the time had finally arrived.  My doctor surgically placed a tiny screw into my skull behind my right ear.  Three months later I attached a small device called a BAHA to the screw. The BAHA can be easily removed and works for both ears. With the BAHA I have near perfect hearing.

Dad went with me to the Doctors office and he nearly cried when we both realized that the new procedure had worked.  It was one of the most amazing days of my life. I will never forget the feeling I had the first time I actually heard what running water sounded like, or the sound of footsteps and the sound of birds chirping.  I didn’t realize how bad my hearing loss was until I could hear everything.

There are nearly 250 million people world wide who suffer from some form of deafness. Unfortunately there is no cure for deafness. The EXCITING NEWS is that recently scientist have begun research using stem cells to cure deafness.  This research is in the very early stages but has been showing very promising signs!

Just thinking about all of the miracles stem cells can provide gives me chills.  The richest form of stem cells can be found in a babies umbilical cord blood.  There is no reason why people shouldn’t save the cord blood. It is discarded as medical waste and is NOT in any way harmful to the mother or child. By saving it you could be saving a life or giving someone a chance to see or hear.

Next time you hear the sound of a loved ones voice saying “I love you” or you hear your favorite song on the radio, imagine what it would feel like to not hear it.

PLEASE HELP ME spread the word about the importance of cord blood preservation!! You CAN HELP by tweeting on twitter, updating your status on facebook and telling everyone you know!

Together We CAN Help save lives,

Natalie Curry

Image Courtesy of http://www.flickr.com/photos/shutterbri/367973928/

Aug
0

Is Cord Blood Banking Expensive?

Image courtesy of D.O.A http://www.flickr.com/photos/d_o_a/

Image courtesy of D.O.A http://www.flickr.com/photos/d_o_a/

While raising awareness for cord blood preservation I have spoken to many different people. I often times encounter the same question. ” Isn’t it really expensive?” The answer is NO.  But then again, can you put a price on a life?

The cost of private cord blood banking can rang anywhere from $800 to $3,000 depending on the cord blood bank.  However most banks offer very reasonable payment plans.  It is a small price to pay to ensure that your babies cord blood will be used at your decression. 

Let me ask you this: “Do you have a cell phone?” “Do you watch cable?” ”Do you go on vacations?” These are all things you CAN live without! Now let me tell you what you would find unbearable to live without: YOUR FAMILY! Currently the stem cells found in cord blood can treat 75 different diseases.  This doesn’t  include the revolutionary research being conducted every day which is increasing this number!

  If you cannot afford to privatly bank the cord blood then you have  the option of public cord blood banking.   With this option you can donate the blood to research or choose to have it stored in hopes of it being a match for someone.

I cannot express to you how lucky I am to have parents who loved me enough to know the value of this life saving resource!  Everyday I make it my mission to educate people about cord blood. Without it I wouldn’t be living…..and I don’t mean just living I am living, and pursuing all of my dreams.  When I count all my blessings I get a smile on my face.

DON’T throw life away, SAVE a life, SAVE the Cord!

Please help me spread awareness of this incredible miracle! You can help by updating your status on facebook and twitter!

Together We CAN Help Save Lives,

Natalie Curry

Jul
4

Have we found the cure for Diabetes?

Hopefully soon a thing of the past - Insulin Shots
Insulin Shots...Hopefully soon a thing of the past!

Insulin Shots...Hopefully soon a thing of the past!

 

It is estimated that 1 million Americans suffer from type 1 diabetes.  Among the most dangerous side effects of the disease are: heart disease, kidney failure, and blindness.   For years the only treatment for this debilitating disease has been through insulin replacement therapies.  However  in 2007 researchers from Brazil and Northwestern University in Chicago conducted a  very revolutionary procedure.  They performed stem cell transplants on 23 patients suffering from type 1 diabetes.  After radiation, the patients were injected with stem cells found in their own bone marrow.  Results from the procedure were extremely promising for the future of those suffering from type 1 diabetes.

The stem cells allowed the patients to create new healthier blood that was not dependent upon insulin replacement therapy.  All of the patients showed signs of improvement and some were insulin free for up to five years.  Although this is not a cure for diabetes it is a milestone that will likely lead to a cure in the future.

The Exciting news is that:   

  • The stem cells doctors used for this procedure are also found in CORD BLOOD!  

Even BETTER NEWS:

  • The stem cells found in Cord blood are far richer then those found in bone marrow.

My best friend Alli has suffered with the disease for her entire life. I have witnessed the struggles she has been through and know the toll it has taken on her and her loved ones.  With statistics increasing yearly, you too may know someone who is, or will suffer from diabetes.

YOU CAN HELP!  Please help me spread the word about the importance of cord blood preservation by updating your status on twitter and facebook.

Your opinions are very important to me, I invite you to leave your thoughts!

Together We CAN Help Save Lives,

Natalie Curry

Jul
0

“The Dull Razor”

Over the last couple of months, I have been writing  a book about my families couragous medical journeys and how cord blood saved my life.  Now  I have something very exciting that I’d like to share with you.  The following is part of one of the many stories that will be in the book!

-The Shaving Day-

 ……………One afternoon while grandma was with me, a nurse came into my laminair flow room holding only a sterile but dull razor.  She had come to shave  all of my hair off.  I remember sitting in the middle of my hospital  bed with tears rolling down my face while grandma held on to me tight. I wasn’t afraid or sad, I was in pain. My scalp began to feel like it was on fire! As grandma watched pieces of my dark hair hit the ground she felt sorrow in that she couldn’t ease the pain it was causing. The burning presisted long after all of my hair was gone.  A few days prior I had received a low dose of Chemo therapy to treat the bad cells in my blood.  In an effort to prevent  having  my hair gradually fall out,  the nurses felt it best to shave it off.

When Dad arrived at the hospital later and noticed what had happened, he was extremely angry! He was upset that no one had infomed him they were going to shave my head.  Not only that, but he was even more furious that they didn’t use any shaving cream or water.  He confronted the nursing and staff and as he says ”They understood all of my AMERICAN curse words!” In the days following the shaving I developed a rash on my head.  Dad says I looked just as cute with a bald head.  But that seeing it reinforced that everything was really happening.  He wanted me to have a normal childhood and knew that he had to keep a positive attitude and that one day I would………………

 More of this story and many others can be found in the completed book.

July is Cord Blood Awareness month. Together we can help save lives! You can help by tweeting on titter, updating your status on facebook and spreading the word to everyone you know!

Your opinions are very important to me.  I welcome you to share your thoughts!  This is just part of my story! I am working on writing my book now and hope to be finished within the next few months.

Together We CAN Help Save Lives,

Natalie Curry

Jul
2

Alarming news for Minorities Representation in Cord Blood!

Since the development of Cord blood banks in 1989, several people have reaped the amazing rewards they have to offer! Many, many lives have been saved and the research completed has been extremely promising. Awareness is  without a doubt the greatest obstacle to the expansion of cord blood banking. However also among these obstacles is that  banks all over the world have an alarmingly low number of cord blood units  available to represent minorities.

Highly underrepresented:

  • Asian
  • African American
  • Hispanic
  • Mixed Ethnicities

Did you know that Caucasians have a 50% better chance at finding a donor through the national marrow program? For others the chance can drop to below 15%!  There are a few major reasons for these staggering statistics.  One of the biggest reasons is that the minorities listed above  have a larger variation of HLA types found in there blood than Caucasians. “What is HLA types?”, you ask? An HLA type is what makes each individuals blood unique. It is the determining factor used when looking for a donor.  So when minorities, especially with a mixed background, are searching for a donor, the odds of finding a match are much higher.

I think it’s safe to say, that this is a major problem!  The solution is simple! We need to raise awareness of cord blood preservation and increase bone marrow registrations. Everyone deserves a fighting chance! There is NO better time than right now! July is Cord Blood Awareness month..together we can spread the word!

 You can help by:  Tweeting on twitter, updating your status on facebook and sharing this valuable news with everyone you know!

Together We CAN Help Save Lives,

Natalie Curry

Jul
3

You tell me WHY and I'll tell you HOW

Mom and I having lunch on NYC

Mom and I having lunch in NYC

“Those who have a strong enough WHY can bear almost any HOW.”- Tony Robbins

When doctors told me I had  to have a kidney transplant. When they told me on more than one occasion that I needed to have biopsy’s to check for cancer or when they told me  that I needed to have surgery on both of my knees and that  my dancing days were over,  I did not ask “why”? When I found out that Emily was putting her life at risk to save mine and my heart was crushed with fear for her, I did not ask “why”?   I never questioned why things happened to me, I always thought that everything happened for a reason. I feel like everything I have been through medicaly was so that other people wouldn’t have to suffer. With every procedure I had done, I thought to myself at least this is happening to me and not to someone else.This attitude has helped  me reflect upon my experiences as experiences that make me stronger.    

 I REFUSE  to allow  my medical problems to  control my life, because I have so many dreams. I REFUSE to give up.  WHY? Because I want to make a difference.  I want to have a family.  I want to see the world.  I want to be able to talk to my mom and dad everyday and I want to see my sister’s accomplish great things. I have learned that when you want something bad enough, you will do anything to figure out  HOW to make it happen!

I have many things I hope to accomplish in my lifetime. One thing is; I want to help give others a chance to fight for their dreams. With your help, we can make a difference…..July is Cord Blood Awareness month please  help me spread the word about this incredible life saving resource!