FA Day Ribbon

FA Day Ribbon

It was 80 years ago when Fnaconi Anemia (FA) was first identified by swiss pediatrician Guido Fanconi. Now for the first time FA  will be receiving it’s prolonged recognition.  May 1st has been declared international FA day.  My passion for FA stems from my personal and life long battle with the fatal disease.  I am one of the lucky ones. However  so many people  aren’t as fortunate as I am.  Many cases  go undiagnosed or result in death, due to the lack of knowledge about the disease.

Although FA has provided me with physical challenges , it has shaped my attitude toward life in a positive way.   My experiences have showed me that living with FA is not as scary as the definition….

Definition of FA- One of the inherited recessive anemias that leads to bone marrow failure. Though considered primarily a blood disease, it can affect all systems of the body. Many patients eventually develop acute myeloid leukemia (AML) and at a very early age.  Without treatment most people die before the age of 10.

My definition- Survivor,  surpassing peoples expectations and living my dreams, while refusing to be a statistic.

It is my hope that FA day will bring much needed attention to this devastating disease.  Please help by donating this cause- http://www.razoo.com/story/International-Fanconi-Anemia-Day-Supporter-Friends-And-Family-Challenge

Together We Can Help Save Lives,

Natalie Curry